1: My Story

For the past two and half years I’ve been on a mission, a mission to find my voice. As a person who has always enjoyed trying to figure things out on my own (not always a good thing!), reading mysteries, doing crossword puzzles, etc., I'm frustrated with not knowing what happened to my voice. In addition, I  have that 'oldest child-mother of three-school director' feeling of responsibility and feel as if I’ve lost control of a very important part of myself. Not understanding this condition has led me on a quest.  In this blog, I will share my experiences thus far, in the hopes that it might help another. Plus, this blog is an attempt to reach out to others, to those beyond my own acquaintance, who might have some answers. I’ve been on a journey and have had experiences with both traditional and alternative medicine in trying to solve this mystery.  I'm still searching.

I know that there must be someone out there, in the realm of social networking, who has had a  similar experience.  I’d love to hear of someone who has overcome a voice disorder, and can share methods and recommend medical contacts. I’ve been diagnosed, as a doctor at UCLA ENT dept. said, with “classic Spasmodic Dysphonia” and was told that there’s no cure, perhaps a short-term fix. I’m not ready to accept that, so I’m still searching for answers. 

My daughter, who writes online both professionally and recreationally suggested this blog. After much thought, for I haven’t even joined Facebook, I decided that the blog might be reciprocally beneficial. Maybe my journey can help another person, and hopefully I’ll learn from someone else about their experience with this condition. If you, the reader, know of anyone who might have experience in this area, either as a patient or practitioner, please pass this on. I’m looking forward to hearing from you.